Faculty of Education, Social Sciences and Law

Sociology and Social Policy

Research Student: Catriona Clark

Organising for Spina Bifida: Exploring the history of Spina Bifida organisations from 1960 to the current day

Background

I have an undergraduate degree in Peace Studies and International Relations from Lancaster University, in which I focused on the provision of healthcare in the Sub Saharan African setting. I also studied MSc Medical Anthropology in 2012 at The University of Edinburgh. I am interested in the work of the Spina Bifida organizations studied following voluntary work with them.

What motivated me to undertake PhD study?

Having studied the idea of healthcare as a state provision and issue of governance, and the experiences of healthcare at a global level, I became interested in the specific experiences of people with a so called preventable condition, Spina Bifida, especially in the technology driven Western context.

What makes me passionate about my subject?

As a person with Spina Bifida, I am interested in the activism around the provision of services and treatment, and the public perception and stigma attached to hidden impairments specifically.

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